The pendulum swings and hits hard patients on opioid drugs
The opioid epidemic has claimed many lives. Overprescribing by doctors has certainly played a role. The push to use opioids more liberally started in the late 1980s. This promotion by many pain experts even led to pain being adopted as the fifth vital sign. One impetus for this push was the mistaken belief in the low rates of addiction when opioids are used to treat pain. Another was the results of surveys of patients being discharged from hospitals. Poor pain control was the main complaint of 40% of such patients. Centers for Medicare & Medicaid Services (CMS) got into the act as well and included good pain control as one of the measures required for the recertification of hospitals. In January 2018, however, the three survey questions about pain management were replaced by three questions about communication about pain. In October of 2019, even these three items about communication about pain were completely removed from the CMS’ HCAHPS Survey. So hospitals and doctors no longer need to worry about relieving pain and the suffering that goes with it. Doctors have to worry more about losing their license or even being put into jail. I’ve testified in front of a disciplinary panel on behalf of a doctor who was at risk of losing his license. An adult patient’s mother complained to the state health department about her son getting prescriptions for opioid drugs. In this case, the doctor was exonerated but the financial and the emotional toll will certainly make him very unlikely to continue prescribing opioids drugs.
These drugs, despite their potential for causing addiction and other side effects, are life-savers for many people. When used judiciously and as part of a multidisciplinary approach, they can provide not only improved quality of life but can make a difference between disability and normal functioning.
This study examined if primary care clinics “are more or less willing to accept and prescribe opioids to patients depending on whether their history is more or less suggestive of aberrant opioid use”. They conducted an audit survey of primary care clinics in 9 states from May to July 2019. They had simulated patients call the clinics and give one of two scenarios for needing a new provider: their previous physician had either (1) retired or (2) stopped prescribing opioids for unspecified reasons. Of 452 clinics responding to both scenarios (904 calls), 193 (43%) said their providers would not prescribe opioids in either scenario, 146 (32%) said their providers might prescribe in both, and 113 (25%) responded differently to each scenario. Clinics responding differently had greater odds of willingness to prescribe when the previous doctor retired than when the doctor had stopped prescribing.
The authors concluded that “…primary care access is limited for patients taking opioids for chronic pain.” and that “This denial of care could lead to unintended harms such as worsened pain or conversion to illicit substances.”
Hopefully, the pendulum will soon begin moving closer to the middle. Another hope is that the researchers will finally discover the holy grail of pain management – a non-addictive pain medicine with few other side effects.
Yes, it is reasonable to try with the standard precautions taken before committing to long-term opioid treatment. The pain specialist usually has you sign an agreement detailing these precautions.
I have been living with NDPH for 13 months. I acknowledge at the outset that you believe NDPH is an unhelpful headache category and may encourage therapeutic nihilism, but a category it is. My situation fits exactly. No headache of any kind for 10 years, then clearly remembered onset on July 19, 2021. I am being treated at a leading academic medical center and have been trialed and failed just about very drug, new and old, gepants, anti-CGRP mAB inhibitors, Botox and most recently a very belated inpatient DHE trial, which I believe should have been offered early on. Thus I have intractable pain of between 6-7 almost every minute of every day that I’m awake. I have not been trialed on Ketamine or Depakote infusions thus far, but I don’t have high hopes. My question, however, despite its potentially heretical underpinnings concerns using buprenorphine, an atypical opioid, for treating my NDPH. The vast majority of neurologists are opposed to the use of opioids for the treatment of headaches (except in rare circumstances of complete intractability) citing medication overuse headache or MOH as an adverse effect, and the possibility of inducing hyperalgesia. However in recent years, buprenorphine has shown considerable promise in the treatment of various chronic pain conditions including lower back pain and CRPS And lacks many of the side effects of traditional opioids. In addition, it reverses hyperalgesia in opioid dependent individuals, i.e. opioid use disorder.
Surprisingly, there are almost no studies of using buprenorphine for The treatment of chronic migraines or NDPH. My NDPH has been refractory to every treatment and I recently consulted with a doctor board-certified in addiction medicine who has extensive experience treating chronic pain with buprenorphine and is willing to try it.
Do you have any thoughts on this? At this point, is it reasonable to try?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7203271/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4675640/
https://www.verywellhealth.com/buprenorphine-for-chronic-pain-management-4156472
https://headachejournal.onlinelibrary.wiley.com/doi/full/10.1111/head.12266